Monday, September 5, 2011

OMS- 15 MONTHS

My diagnosis of OMS seems years ago.  In fact, the diagnosis date was June 25, 2010.  Every now and again, I compare what I was doing this time last year.  This time last year I was walking alone but could not run.  Joe let me drive myself to my Physicial Therapy appointment for the first time.  The IVIG/Steroid treatments were being reduced to every other week and I was still on Keppra 1500 mg. twice daily.

Fast forward, 15 months later.  I have been working full time since mid-January 2011.  I have been off all of my medicines since mid-May.  My running stride is back to normal, which means steady but not fast.  My hand strength, which I have not mentioned so much before, but have heard other OMA friends talk about, is back to normal.  Also, my ability to move my head back and forth and have my eyes comfortably scan while reading, driving or watching the grandchildren in sporting events is almost normal. 

What is left as far as symptoms?  I still notice small amount of tremor feeling mostly in the morning.  I still will visibly tremble if I am in front of a group speaking.  My head tremor when nervous rarely appears but mostly it was noticeable to only me.  I can multi task better.  Focusing on a conversation for a long period is still a bit difficult.  There is still some difficulty in short term memory but could also be a bit of age.  My stamina has definitely improved.  The skin sensitivity reappears if I am extremely fatigued. The several months prior to my illness seems lost to me.  I try to remember details of family gatherings or work projects but that entire winter and spring of 2010 is mostly lost.  As I look at pictures of me over the last year, the realization that I was sick is very real.  There is not animation to my face.  Even since January when I had my photo taken for my work ID, I look different.  My face was still a little swollen then due to the steroids and my eyes kind of droopy and I think that was from the Keppra. 

When I think back where I came from since the diagnosis of Opsoclonus Myoclonus Ataxia Syndrome, I am truly amazed.  No one could have made me believe or probably even my family and friends that I would be functioning at this level.  I was even filling out my disability papers with Social Security office this time last year and now I continue to contribute to that fund.  YIPPEE!!! I think????

For those of you newly diagnosed with OMS or continue to battle with smyptoms and the family and friends that support you, stay strong!  Improvements happen in very small increments.  I encourage you to continue to exercise your body and mind.  Celebrate your improvements no matter how small.  Thank God that you are here as an inspiration to others and thank those that continue to have faith in you and love you.

GOD'S GOT THIS!

Love,
Kim

Thursday, June 23, 2011

OPSOCLONUS, MYOCLONUS, ATAXIA SYNDROME: ONE YEAR

On June 23, 2011, my life was changed forever.  I woke up not being able to walk unassisted, preceded by symptoms of tremors and ataxia that started to gradually worsen over a 5 day period.  I cannot believe it has been one year and that I am typing this blog. 

My feelings are nothing but gratitude.  Gratititude towards God to bless me with strength to persevere.  Gratitude towards my husband, mom, children, grandchildren sisters and brothers for their love and support of my physical and emotional needs. Gratitude to my extended family, Aunts, Cousins, Neices, Nephews from both sides of our family for your years of love, support, and acceptance. Gratitude towards my friends that continue to ask about me and listen to my ongoing litany of my health issues.  Gratitude towards my new on-line OMS support family that either are experiencing themselves or with their family members the overwhelming issues with the effects of OMS and still take the time and energy to share their lives and ask about me. Gratitide towards the help and expertise I recieved from my doctors, nurses, PT, and OT staff that each had been placed in my path by God.

I cannot imagine how this has impacted many lives and how those impacted may be changed.  My family changed vacation or took vacation to care of me.  They took care of my personal hygeine needs, cooked for me, shopped for chothes for me, watched over Joe who was going through the scariest moments of our marriage and those who would just come sit with me.  Most importantly, they kept a sense of humor and made me laugh.  The people I worked for and worked with who always assured me that my job was waiting and never let me worry otherwise, even when most of us thought there was no way I would be back!  Those same people cooked meals, visited, sent cards, gifts and love.  When I would visit work, I felt like a celebrity.  Those same people continue to ask how I am doing often and tell me they continue to pray for me.  WHAT MORE CAN A PERSON NEED BUT PRAYERS!  My friends, I have made through work, running buddies, friends from my school years (all the way back to elementary school), friends from church, Joe's friends from Umpiring softball and our dear neighbors have never stopped worrying about Joe and I and checking in.  Many times you hear about early support for struggles in someone's life and that support dwindles but I have not felt that for one second.  MEA CULPA!!  Many of the above wonderful, loving friends and family spent hours of personal time researching OMS.  Many of my family members who have no medical background could do a neuro exam and spit out words they never heard in their lifetime, before I became sick.

Thanks to each and every one of you that has somehow touched my life.  My only prayer is that each of you feel that same love and support from God and those around you. I am not sure how one person can be so blessed as I have been.

As many of you know, Joe and I lost a granddaughter, on June 3, and that was the most difficult time we have both experienced in our lives.  We are only at peace knowing she is with God, where we are all striving to be, and that we were able to make so many precious memories with Paige. Once again, the family came together. My friends were there for Joe and I again....still! 

My OMS symptoms still linger but hardly noticeable.  There are no external signs that I am aware of.  However, sometimes, during very intense moments, when I am very nervous or intimidated, my head will shake/tremor just a little.  My ability to work through problems and make decisions seems to be back to near normal.  I do have a little trouble with subtracting numbers??  Like, I forget my age and I can tell you what year I was born, 1957, but I cannot come up with the number.  My short term memory comes and goes.  Recently, a young lady with OMS talks about her head feeling "heavy".  I have not been able to put the word to that feeling but I do feel that same thing, "heavy or full".  Also, I still have the irritating odor of cigarette smoke in my nose.  I talked to Dr. Olson and looked it up on the internet and it is a for real problem.  Of all things for me to smell......I cannot think of anything I hate worse.  Maybe God did get me on that one....teeheehee.  The smell is not all the time but about 60-65% of the time.  I still can get very tired and some days are worse than others.  However, I can put in 8-10 hours of day at work and hang in there pretty well.  I do have a problem with getting my confidence back to tackle problems and make decisions.  I am getting there but that makes me feel very frustrated. 

How can I complain, here is where I started one year ago:  could not walk, could not read, could not write, could not type, could not bathe self, walk to bathroom by myself, put on makeup, pick up anything off the floor/bend over, at times could not feed self with spoon, could not drink from a cup but had to use a straw, could not drive, could not hold a baby (Ollie), could not sleep through the night, my skin hurt, could not cook, and probably some other tasks I cannot remember but you get the picture.  Also, the emotional ups and downs from the medication (I suspect the steroids), I guess I thought it and said it, so I hear now..... Well, look at me now...who would have thought??!!  Who knows what the new normal will be.

I love each of you and I thank you!

GOD'S GOT THIS!

Love, Kim

Wednesday, June 22, 2011

Paige Nicole Wimsatt

Paige Nicole Wimsatt, was born June 22, 1993.  She is the 6th Grandchild of Joe and I.  On June 3, 2011, Paige was asked to heaven by God.  We will all have a huge hole in our hearts and our family will never be the same. 

The day Paige was born was the one of only 2 days I asked that Tabby not go into labor.  Those two dates June 21 and June 22, Kelly and I were at University of Kentucky, orienting to Kelly's first year of college.  Being in true Paige style, she was born 1 and 1/2 hours before Kelly and I got to the hospital, on that June 22.  You see, Paige liked to do things in her own way.  Joe was already at the hospital and got to hold her very early on.  Paige was the first grandchild born in Louisville, so immediately we got to spend more time with her than our previous 5 that lived in Nashville and Virginia.

Immediately, Paige made an impact in all of our lives.  Lucky for us, Tabby and Kirk (parents) lived only about 2 miles from us and her other set of Grandparents (Tabby's Mom and Dad) lived behind us.  When I got off work, if I knew Paige was not going to be with us that day, frequently I would just have to stop in and get some Grandma love.  Paige demanded attention from very early on.  She knew she was always on stage and would jibber on even before she could form words.  She would smile and laugh often.  She had the cutest little giggle.  Her little bald head would just bobble around as she "talked".  If she was not getting the attention she deserved, her "talk" would get louder and louder.  Not that she was ever starved for attention??

At our house, Joe,Kelly, Denny and I showered attention and would fight over her.  I have a memory of Joe saying no grandkid was every going to sleep in our bed.  Well....early on, when she was 2 or 3, Paige was sleeping in Kelly's room on a pallet.  That particular night, there was a bad thunder storm, and she crept in our room and said "Kimmy", all of a sudden you hear Grandpa's voice say,  "come on up here honey" and he cradled her in his arms.  Needless to say she never slept on a pallet after that.

I also recall a Grandpa moment, when he was working at his tool table in the basement.  Paige was with him "helping".  She was about 3 or 4 years old. All of a sudden I heard "KIM, COME AND GET PAIGE".  I asked what she was doing, he said she will not stop talking or asking him questions.  That was our Paige and that was Grandpa.  Grandpa always says "Patience".......?????

Denny became the "baby whisperer".  He would pick Paige up when she was a bit fussy, which was not very often, and she would start rubbing his shaved head, and he would talk soothing words and she would be so still and so calm.  Kelly would have all her friends over and Paige was the belle of the ball.  She was like their little protege or play toy.  Ralph lived in Lexington and would come in just to see Paige.  He was so intrigued by every little thing Paige did.  That next year, Ralph, gave Paige one of her best friends, cousin Alex.  Over the years, all of the cousins have grown to be very close.  Many times a family reunion turned into a sleep over with all the cousins.  There were many late nights, laughing, arguing, crying, Grandpa growling and fun times.  And many, many, many, memories!

Some of my favorite memories, are Paige's love of music and dance.  I got the honor of picking her up from day care some times.  We would sing all the way home, You Are My Sunshine, Twinkle Little Star, I'm A Little Tea Pot......  There was constant singing and chatter.  She just lit up my world.  As soon as she could walk she could dance.  She was often seen on my table or just about anywhere, dancing.  That Paige could really move.  She got that rhythm from her Momma.....sorry Kirk.

As Paige grew older, we were all still very involved in her life and the life of her growing family of brother and sister, Logan and Mattie and more cousins.  We have 17 grandchildren.  Paige had many cousins on her Mother's side as well. 

Another precious memory, were times I got to take Paige shopping.  This can be quite an event because I really get into granddaughter shopping.  Being the true angel she was, she would always patronize me, by trying on as many clothes as I would bring her.  What fun I HAD!!

Joe and I, currently have in our house the collage of pictures of Paige with Aunts, Uncles, Grandparents and cousins.  Another treasure, is a DVD set to music of Paige with her family. There were many soccer games, birthdays, holidays, family reunions, that we were all a part of, over the years. Paige was right there in the center and depicted in this wonderful memory of our short time with her.

I Thank God for sending this wonderful angel into our lives.  We are blessed to have each other in this family and have been holding each other up during this sad time.  On June 8, Kirk and Tabatha had a beautiful tribute to Paige's life and in true family fashion, we all came together and loved each other.  We saw love in many ways.  I especially want to make mention, of the brightly colored Converse shoes worn by the cousins and the Uncles the day of her memorial.  Brightly colored Converse was a staple for Paige.  One of her last gifts to herself was a pair she purchased, with her Graduation money, which had "The Joker" from Batman on them. 

Paige expressed a love of Sea Turtles and that one day she would like to come back as a Sea Turtle.  One day, if you pass a car with a Sea Turtle decal on the back window, that very well may be a family member of Paige's. Yesterday, we received in the mail adoption papers and a picture of an honorary Grandseaturtle, named Scooterpie.  What a great gift and the paper was to, "Wimsatt Grandkids".  WOW!  I keep telling you all, we have amazing friends!

Wednesday, June 22, 2011, is the 18th Birthday of Paige. Joe and I have not missed a single birthday and we will celebrate Paige's life, once again.

We will continue to celebrate family and Paige will be celebrating with us.

GOD'S GOT THIS!

Love,
Kim

Sunday, May 15, 2011

WHAT A DIFFERENCE A MAY CAN MAKE.....OMS 11 MONTHS

Today, I got a call from a Dad, who asked if I was the same Kim from kimsdancingeyes.org.  He explained his adult daughter was recently diagnosed with OMA.  A few minutes later I was speaking with his daughter, Kristal.  She was recently diagnosed with OMA.  She is a mom of small children, a wife, a daughter and a friend.  I was reminded what a blessed person I am to have had so much love and support all my life and especially since my diagnosis last year of OMS.  Kristal sounds as if she has the same amount of love and support at home from her family and friends.  Since last year, I was introduced to an on line OMS support group that my daughter found, that has been a great source of comfort and information.  I have met Helen, she also has OMS and the first adult person that reached out to me through the on line support group. Later, I met Francois through his wife Evike.  There have been  a few other on line meetings with others, but these are the few adults that I have been fortunate enough to have contact with since my diagnosis.  As you recall, we are a small group of 1 in 10,000,000.  If you had access to the on line support network for OMS, mostly there are parents of children with OMS.  These parents are a huge support to each other.  Their every day trials are totally different and mostly overwhelming when I read their accounts. Their children's brains are still developing when they get this debilitating disease.  The outcome tends not to be as good as for adults that are diagnosed early.
To actually have a conversation with someone "like me" gives me a special connection.  Sometimes it is them helping me and sometimes I can share a little of my story to help them.  Whenever you dream of doing something rare, like winning the lottery or coming up with that rare invention, being diagnosed with a rare disease, is not usually on the list.  I bet even folks that win a lottery like to talk with someone like them to understand.  How did it happen? What did you do about it? How do you feel now? These are the same questions each of us have when we talk with each other.

SO THANK YOU ANGIE, KELLY AND MARY, for giving those of us effected by OMS access to each other.  These wonderful ladies built and added to my blog before I was able to read or type.  You have made a difference in someone's life!  ESPECIALLY, YOU HAVE MADE A DIFFERENCE IN MY LIFE!!

Since last month, I continued my weaning process with Keppra (Levetiracetam) that I was put on for my Myoclonus.  I was optimistic I would be off my medicine by now.  However, when I got below 750 mg. per day, I became symptomatic.  My Myoclonus did not return, it even went away, i.e., no more muscle jerks.  However, I traded that off with some withdrawal symptoms.  I called Dr. Olson to make sure it was not OMS.  He believes it is all medication withdrawal.  The withdrawal symptoms, include some sweating, dizziness and head shaking?  Also, if I become a bit on edge or nervous, I have full body tremors.  It is mostly embarrassing.  He recommended that I wean slower.  So that is where I am. 

From the outside, no one knows the difference, unless of course, I get terribly agitated.  From my point of view, I seem to be getting better from my toes to my head.  My muscle twitching has been improving in that direction, so my head must be the last to go.  Kind of funny sounding.

Since last May, I must say I feel much better. This time last year, I had not been diagnosed with OMS.  What I was experiencing was extreme fatigue and I just began with a dry irritating cough.  I was also having really bad insomnia.  I am not sure if this was caused by my rather frequent hot flashes or early signs of OMS.  I could barely function at my job and had disinterest in just about everything. 

This May, I just completed a half marathon, mostly running.  Joe and I had our annual Derby party and I had a ball and made $14.00.  I look forward to everything.  I still get tired easily, but I know when I need to rest.  I do get frustrated because I want to get my head back and get better faster. PATIENCE AND FAITH!  I have sure come a long way. I expect Joe and I will have a very wonderful and quiet summer.  Last year, we had travel plans for vacation.  This year, we both feel much more comfortable staying close to home.  There is no place like home....

GOD'S GOT THIS!

Love, Kim

Sunday, April 10, 2011

ALMOST 10 MONTHS: GREAT, FANTASTIC, AMAZING

Recently, I was blessed to run with my daughter-in law, Stacy, and her friend (our friend) Tara in Nashville in preparation for a half marathon in Louisville.  We ran /walked/complained/cried for 9 and half miles so we had plenty of time to talk.  I mentioned that someone from my work asked what the family thought of my near recovery.  I said, well, I don't know, I think that we are all thinking everything is okay and they don't even think about it.  Well, Stacy said, I think you should tell them, you are doing GREAT, FANTASTIC, AMAZING, (or something like that), still don't remember conversations exactly.

I have to agree.  With plenty of prayers and great treatment from my doctors, I can say, I see light at the end of the tunnel.

My visit with Dr. Olson (Neurologist), on February 17 went very well.  He commented that I was probably about 3 to 6 months ahead of what was usual, if this disease can have any usual.  He decided to wean me off my last medication, Keppra (Levetiracetam).  I was taking 1500 mg. twice daily, so he asked that I back down by 500 mg. and give him a call in a week or two.  That was on a Thursday, by the time Monday came around, I was having serious withdrawal symptoms.  There was sweating, tremors, light headedness, my  left eyelid was drooping and having little tics, and my eyes were glassy (like I had been drinking) and I was exhausted.  This was a bit of conern since everyone kept asking are you okay.  It was pretty bad feeling.  One of the doctors I work with mentioned withdrawal symptoms, so rather than call Dr. Olson, I thought I would wait it out.  Sure enough, these symptoms started to decrease a little each day.  Since I am in total control (even thought I know who truly is-GOD), I decided not to call Dr. Olson, and began decreasing my Keppra by 250 mg. each week instead of 500 mg.  This worked much better and the withdrawal symptoms (for those weaning off Keppra) are a lot less signficant, days 4, 5 and 6 being the most uncomfortable, but not terrible.  Last week I spoke with Dr. Olson, to see if he agreed with my treatment plan and to ask if he had a problem with me weaning off my Keppra completely.  He was fine with this as long as my Myoclonus did not return.  CAN YOU IMAGINE, THAT IF I KEEP WEANING, I WILL BE TOTALLY MEDICINE FREE MAY 2, 2011. 

I am still able to work 8 to 8 and half hours a day.  My running is also improving.  Since my last posting in January, I have completed a 5K (3.1 miles) running the entire time with Joe-husband, Kelly-daughter, and Olivia-granddaughter.  Two weeks later, I completed a 10K with one of my besties, Nancy. Joe ran as well.  I only stopped running for one potty break and nearly cried the 5th mile when I realized I was going to make it the entire 6.2 miles.  Finally, to complete the Louisville Triple Crown of Running, I finished a 10 mile run with another one of my besties, Julie.  Both Nancy and Julie would have had awesome times but stayed with me the entire time.  WOW!  Do I have good friends or what???!!!!  I have finished the Triple Crown many times, but none so gratifying as this year.

As for my OMS symptoms, I am almost 2 months away from a year from my initial diagnosis on June 25, 2010, and I cannot believe my progress.  I can read and write without any problems.  My thought process and multi-tasking skills are finally starting to return.  However, I often have to be reminded by a dear work friend (who can get by with it) to filter what comes out of my mouth even though not so nice things go through my head!  I do choose my audience though.....mostly.  I just noticed FINALLY this last week, when I run, my abdominal/pelvic muscles are not so jerky.  My sleep is good.  Another really good symptom to lose is my skin irritability.  I can walk up and down steps holding items in both hands.  My stamina is improving bit by bit and I believe I feel better than this time last year, when I must have started gettting sick.

The most noticeable symptom to me, is when I am faced with some emotional or trying issues, my head will be a little jerky (not sure if noticeable).  This makes me feel very uneasy.  I can usually pull myself away and these feelings will all resolve on their own.  Mostly happens in the morning.

On April 30, 2011, I will celebrate with some family and friends as we complete the Kentucky Derby Mini-Marathon, (13.1 miles).  It will not matter, if we walk, run, crawl, cry or however we are able to finish.....we will finish!  I love you all.

I continue to be grateful for all of you that have kept up with my progress and thank you and pray for you.  Please also pray for all of those that have OMS and their families or those that need their hearts lifted and to feel the peace and love my family and I have felt over the last several months.

God's Got This!

Love,
Kim

Sunday, January 30, 2011

OMS- 7 MONTHS SINCE DIAGNOSIS-A HUSBAND'S PERSPECTIVE

Joe has been asking all week if I made a blog recently.  He really looks forward to reading them before I send them out and I think he secretly loves to be included in my blogs.  My OMS is still improving by bits and pieces and dramatically from where we began 7 months ago.  I am back to work full time as of last week.  My running buddy, Julie and I, have run a few times this past week.  We were able to complete at least 3 miles on two different times, once on the treadmill and once on the road. 

For this blog, I asked Joe if he would give his perspective of my illness from a spouses view point.  He wasn't very thrilled with the idea but has agreed to let me do this like an interview........saying something, like.....that way you will have some control.  I DON'T KNOW WHAT HE MEANS BY THAT!!!???

When did you first begin to notice Kim was not herself and explain what you noticed?  I noticed that her movements were not normal.  She needed a lot of help to get up and help with walking.  Her balance was off, like she was drunk or something.

What were your initial feelings when you and Kim recieved the diagnosis of OMA/OMS?  Neither one of us understood what this meant.  How could she have got this?

How did this change your life?  I worried day and night.  Mostly I was uncertain how to take care of someone day and night.  Was this going to my future?  I had to do everything for her; her personal needs, cooking for us, driving everywhere.  I felt like I could not leave her by herself at any point and time. 

What made you the most afraid?  The unknown.  I knew her and I knew she would always try to do things on her own, her own way, and that scared me.  I felt like if I was not around and she attempted something, she would get hurt. 

Were you ever afraid she would not survive this illness?  Yes, because we had so little information from the medical community that she could improve.  Even though the doctor said she could get over this, he also said she may never really get back to her normal self.  KIM:  (I am leaving out the rest of what he said was her normal self, B**!#)

What have you learned from this experience?   You can never, ever know what lies ahead for you or your loved ones.  I have often wondered, if this should have been me instead of her, mostly because of our age difference.  I thought I should not be in the position to take care of her versus her taking care of me because  you always expect the older person to get sick first rather than the younger person in the prime of their life. 

How did you maintain your patience and good humor?  Personally, I don't think I did because I was always stressed about the unknown. 

How did the family respond?  The family really came together.  I kept hearing the same comment, that she was the rock of our family.  They were all very concerned. 

What were some of things that you started to notice to make you feel like she was going to get better?    The first day she took care of her personal needs (walking to the bathroom and bathing self) without me being in the room.  She instructed me to take the walker to the basement.  When she started to walk up the steps from the garage to the house without a cane.  The first time she drove with me in the car.  She was thrilled when she drove the car by herself without me inside.  Whe she started to walk outside, I knew things were going to get better.  After a while, she started to work part time.  Then one day, she came home after an 8 hour work day, and she was thrilled she felt so good physically and mentally.  I knew then the Good Lord had answered our prayers. 

Other thoughts?   The biggest positive was the people I met through the internet , her work, church, and other medical professionals and their support.  The most pleasant surprise was the support we got from her work enviroment.  I did not realize how much she was loved and respected  by the people at work, it was shocking to me.  I knew how much family and friends cared and respected her.  The reason I say this, is because as most people know, you never see the interaction of your spouse with their co-workers as you see interactions with family and friends. 
The hospital staff became like our family.  The nurses, Physical and Occupational Therapists, and the physicians really cared about her. 

That completes the interview from Joe.  I know this has been very stressful for my husband.  Our family and our good friends continue to provide support to both Joe and I.  He loves to tease with our friends.....I guess that is where our kids get their good sense of humor genes!  WE ARE BLESSED!

GOD'S GOT THIS!
Love,
Kim

Friday, December 31, 2010

OMS-SIX MONTHS AND LOOKING AHEAD TOWARDS 2011

It has been officially six months, A HALF OF A YEAR, since my symptoms and ultimate diagnosis of OMS (Opsoclonus Myoclonus Syndrome).  It is unimaginable to believe where I was then and where I am now.  By the Grace of God, I am here to type this blog and tell my story.

The changes since my last blog report, in November, have been incremental compared to the major progress made earlier in my recovery period.  The last IVIG/Steroid treatment is now 42 days behind me and before that treatment on November 19, I had never been longer than 14 days, without IV treatment.  After discussion with my Neurologist, he decided, my oral medication Keppra 1500 mg. twice daily needed to continue until my Myoclonus was completely gone.  What that means, is occassionally I will get some jerkiness in my abdominal/pelvic area.  Basically, if I decrease the dose of Keppra now, I would probably end up with increasing jerkiness.  This symptom is not terribly noticeable to others, but mostly to me when I am standing from a sitting position and I am tired.  I will also get some instability in my pelvic/abdominal area when I try to run.  Each time I try to run, this gets a little better.  If I do my core exercises for strengthening, the instability improves.  My previous symptom of skin sensitivity has good days and bad days.  I rarely take Ibuprofen for this any longer. Sleep seems to be the cure for the discomfort. 

My stamina is improving.  I can now completely get ready in the morning, fix my hair, put on my make-up, etc. and not use a chair.  Joe moved the shower chair to another room for a week and now it is down in the basement......WOOHOO!!!  I am increasing my work schedule and find it hard to go home sometimes.  Once home and I eat and get warm, I go to sleep.  Usually around 7:30 p.m. and then I wake up at 9:30 p.m.  and go to bed.  My work schedule will increase again next week but I am excited that I can even work!

My thinking seems to be improving.  I think this may have more about being off those darn steroids.  I still have some trouble remembering things, so I write constantly and refer to my notes.  Sometimes doing more than one or two things at a time is challenging.  If you ask me a question while I am doing a physical task, either the question will get no answer or something that does not make sense or you may get a cup of ice on you if I am filling a cup with ice.  Just a warning!!

Dr. Olson, my Neurologist, is very encouraged that I will get 100% recovered.  The Neuro-Psychologist signed off after two visits and told me to tell Dr. Olson, I was doing wonderful.  Those that know me can think differently, but we are just talking OMS!  

Today, I finished the New Testament, Psalms and Proverbs, by starting to read a daily walk through bible since August of this year.  I am pretty proud that I kept that up and feel it has been a comfort, a)I can read, b)bringing me closer to understanding my ultimate goal of everlasting life.  Joe and I was also able to go to my favorite park, Seneca park today to walk/run.  I have not been back since my last run with Julie, on June 21.  I got a bit choked up, when I was running some of the stretches.....but mostly, I smiled almost the entire 4 miles.  Joe thought that all together, I probably ran a full mile.  Today we signed up for the Louisville Triple Crown of Running, first run 5K, second run 10K and 3rd run 10 miler.  Ultimately, I would like to run or walk the Derby Half Marathon on April 30, 2011. 

My list for 2011 is educating the medical community about OMS, finishing the entire bible (the Old Testament is really hard), volunteer work when my stamina improves, returning back to work on a full time basis, running and just loving my family and appreciating my life.

My resolution for 2011, try to be more patient and give as much as I have been given.  Physical, 100% recovery may take a few more months or so, but Joe, the kids, grandkids and I are thrilled with my current status. We all had an absolutely fabulous Christmas.  We all pray for a fantastic 2011 for each of you that have followed us along on our OMS journey. I can say my recovery is by the Grace of God and all of you who have prayed for me and supported me and my family in many different ways.


 Last line of the bible:  THE GRACE OF OUR LORD JESUS CHRIST BE WITH YOU ALL.  AMEN!

GOD'S GOT THIS!
Love,
Kim